tag:blogger.com,1999:blog-274758392012-02-16T15:34:33.914-08:00lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.comBlogger111100tag:blogger.com,1999:blog-27475839.post-1155919363908908032006-08-18T09:39:00.000-07:002006-08-19T22:05:09.106-07:00

I live in Cleveland Ohio U.S.A. and I am 62 years old and own a small Boutique. I never knew about NF until about 18 years ago. I got NF from what they call a mutation of a gene. There is no one in my family of ten that has NF. I suffered with pain in my face for a very long time but no one was able to ever find out what was wrong until I went to a dentist that was a specialist to ask about the

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com0tag:blogger.com,1999:blog-27475839.post-1155612736269496012006-08-14T20:26:00.000-07:002006-08-18T14:03:06.863-07:00

Don’t call me disabled, that is not really true.How would you like it, if that is what I call you?Don’t tell me I am not normal it hurts me thru and thru.What is normal for me is not normal for you.Just because I am ill and I am not like you.Don’t tell me what I can’t do.I may not be a Cadillac or a Rolls RoyceHowever my illness was not my choice.For everything you tell me, that I can’t doThere

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com1tag:blogger.com,1999:blog-27475839.post-1155271139170499862006-08-10T21:16:00.000-07:002006-08-14T23:43:11.103-07:00

By AnthonyI live in the Netherlands. The doctor found out I had NF1 when i was 8 years old... I didn't have too much problems with NF through my childhood years... The lumps started when I was 17 years old. I've had many surgeries these last few years. Going to school was not easy for me, I had a hard time learning things w/having LD (learning disability) at times I felt frustrated w/not being

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com1tag:blogger.com,1999:blog-27475839.post-1153373273088387242006-07-19T22:21:00.000-07:002006-08-14T23:47:31.346-07:00

By Yvonne FoongWhenever people express admiration for me, I feel overrated because I am no more than your average neighbor.Like many 20-year-olds, I wake up every morning to check for new e-mails, read the news, and do random chores before heading to college. I am now deaf, so waking up without the alarm clock is relied entirely upon constant training of the subconscious mind.I am a student of

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com1tag:blogger.com,1999:blog-27475839.post-1153273662687742892006-07-18T18:40:00.000-07:002006-08-14T23:48:10.716-07:00

Hello to you all out there, especial to my friends, family, & those who I have met through cyber space I am very blessed to have you all in part of my life for your support, courage, strength, faith, friendship and the great example you set for others. I've asked a few important people to tell a little about themselves to share and explain to others about their health condition to how it affects

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com2tag:blogger.com,1999:blog-27475839.post-1153224373370872102006-07-18T04:54:00.000-07:002006-08-14T23:49:01.216-07:00

Adversity Introduces a Man to HimselfBy KimberlyIt has been said: A path without obstacles probably leads a man to nowhere. As for my life I believe this to be true.As a young child I was diagnosed with diabetes and Placed on injections. The first thing I asked my parent was: do I get to go to camp UTADA, a camp for diabetics. My older sister had been and I wanted to go too. So two weeks after

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com0tag:blogger.com,1999:blog-27475839.post-1150414072240247432006-06-15T15:50:00.000-07:002006-08-14T23:49:44.480-07:00

The presence of multiple neurofibromas is an important diagnostic sign of NF. Single neurofibromas may occasionally occur in people who do not have NF. The number of neurofibromas varies widely among affected individuals from only a few to thousands. There is no way at present to predict how many neurofibromas a person will develop. Dermal neurofibromas rarely, if ever, become cancerous. Such a

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com0tag:blogger.com,1999:blog-27475839.post-1149022921507945302006-05-30T13:54:00.000-07:002006-08-14T23:50:28.853-07:00

Just a lil story about my lil sis, (Jai)My lil sis and I met when we were both teachers assistance at the at the School for the Deaf and the Blind.. Besides the school being unique in itself this (young) woman who sat in a wheel chair was as equally beautiful and unique.. Jai, Is from India and she is a lil angel waiting for wings.. I knew it when I first met her she had a gentle and sweet

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com1tag:blogger.com,1999:blog-27475839.post-1148625546904061872006-05-25T23:32:00.000-07:002006-08-14T23:51:08.496-07:00

I watched The Oprah Show she did a special presentation about a man (Elie Wiesel) who survived the holocaust and live to tell about it. He wrote a book about his horrific experience called “Night”… He is Nobel Peace Prize Winner prolific author, professor and world-renowned humanitarian. He took us back to Poland Auschwitz death camp where 6 million Jews were killed under the control of Adolf

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com0tag:blogger.com,1999:blog-27475839.post-1147311156068219502006-05-10T18:30:00.000-07:002006-08-14T23:54:15.343-07:00

I have a story, a message, and mission to accomplish to inspire, to teach, to help others learn and understand that despite our differences we have to look at it as an aspect of why we are that way… how we can learn from it and use it to teach others. No matter how great or small it maybe it could make a difference in one’s life. We are all the same inside the only thing distinguishes us from

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com2tag:blogger.com,1999:blog-27475839.post-1146669382036880812006-05-03T08:03:00.000-07:002006-08-20T20:27:55.283-07:00

My name is ??? but for now I go by lil wings. I want to start with a welcome… thank you for stopping in… please take a look around and drop in a few words… I hope you come back long enough to get to know my name the meaning behind it…Please be patient w/me for all this web creating stuff is all new to me any tips of the trait or pointers you have I would very much appreciate it… I need all the

lilwingshttp://www.blogger.com/profile/13293028722093189709noreply@blogger.com6